Storming the Hill

By: Samantha Barbian

We came. We saw. We conquered. From March 19-21st my dad, Craig, and I attended the Parkinson’s Policy Forum in Washington DC. We were joined by approximately 300 other Parkinson’s advocates from around the country. The feeling of being one community and truly supporting each other was undeniable. I found it interesting hearing all the different stories how Parkinson’s has affected each persons life. No two stories in the room were exactly alike just like the disease does not effect each person’s body and mind the same.

One speaker who was so inspirational that I will never forget was New Jersey Senator Cory Booker. He told stories about his life growing up and the stories his father would tell. Near the end of his speech he revealed that his father had Parkinson’s. This quote from Senator Booker hit home with many of us:

“My dad showed me what courage was about, as he struggled with this foe of Parkinson’s, and more than that, he showed me what the power of the community is about. About people who were there for him, who counseled him, who laughed with him. About folks who understood the complexities of the challenges.”

Parkinson’s patients need that community to help them keep pushing forward and to never give up.

If you were unable to attend the Parkinson’s Policy Forum there are a few ways you can still get involved. One way is to check out the website www.parkinsonsforum.org for all the information that was shared at the conference. Another way that you can get involved is to contact your legislators and ask them to fund the National Neurological Surveillance System. This program is a database for all neurological diseases to keep track of the occurrences in our society. We are also looking for continued support of Parkinson’s research done on veterans who served in Vietnam by the Department of Defense.

If you would like more information about the forum, please contact me at [email protected].

Samantha with New Jersey Senator Cory Booker

Read more

Exercise Improves Cognition in Parkinson’s Disease

It’s well known that exercise invigorates both body and mind. Exercise studies in Parkinson’s disease (PD) have shown improved mobility and quality of life, and possibly slower rate of disease progression. But what can exercise do for memory and thinking (cognition), which can be affected to different degrees at different points in the course of Parkinson’s?

Recently, a group of researchers answered that question by reviewing exercise and cognition studies conducted in people with Parkinson’s over the past 10 years. They confirmed the benefit of exercise on cognitive function in people living with PD.

For this study, researchers analyzed nine randomized controlled trials from several countries. The participants of these trials were, on average, 60 to 74 years old, diagnosed with Parkinson’s six years prior and living with mild to moderate disease. Exercise programs varied in length, number and duration of sessions, and included studies with a treadmill, stationary bicycle, stretching and strengthening (with and without a Wii Fit exercise program), tai chi and tango. Volunteers’ cognitive function was tested throughout each study to see if the exercise had an effect.

Of the specific exercise programs reviewed, tango, stretching and strengthening with a cognitive component (a Wii Fit exercise program), and treadmill training had benefits on cognition. The latter — walking at a person’s preferred speed or slightly slower for about an hour three times a week for 24 weeks — boosted cognitive function more than the other two exercise programs.

More support for exercise, and treadmill exercise in particular. But this doesn’t mean that treadmill walking is the best exercise for Parkinson’s. Many questions remain about the optimal type, amount and intensity of exercise to keep cognitive (and other) symptoms at bay. Larger, well-designed studies can help provide answers and clarify effects.

Multiple forms of exercise for many symptoms are currently being investigated. Register for Fox Trial Finder to match with recruiting trials. As researchers work to define the ideal exercise for your Parkinson’s, continue regular exercise that you enjoy.

Speak with your physician and physical therapist to design a program that meets your needs and visit our website to learn more.

 

Article from Michael J. Fox Foundation for Parkinson’s Research.

Read more

Don’t Get Mad, Get Funny

No matter how much we love them, caring for family members can be a very stressful job. And all that stress can take its toll on our health and make our role as family caregivers even more difficult.

One of the best ways to reduce stress and feel better about your caregiver role is to laugh. Laughter has been shown to improve both physical and emotional health and to help us feel renewed and rejuvenated.

Here are six simple ways to add more laughter to your life:

  1. Make funny friends. People who make you laugh not only give you the gift of laughter, they also help teach you how to change your perspective on life and lighten up yourself.
  2. Read funny greeting cards especially if you’ve had a really stressful day. Greeting cards are great because they deliver a laugh almost immediately and they represent a diversity of types of humor.
  3. Have five of your favorite funny movies saved so you can watch them when you’re feeling overwhelmed by stress. Consider funny movies to be part of your emergency first aid humor kit. If you can’t think of your favorites offhand, check out the American Film Institute’s list of 500 funniest movies of all time.
  4. Wear a funny button in public. Wearing a funny button communicates to everyone who sees you that you have a sense of humor and are open to hearing about their humorous experiences.
  5. Look for the funny. Instead of focusing on life’s miseries, try to find the laughter in everything that goes on around you. The majority of things we laugh at come from spontaneous situations that aren’t meant to be funny. Think of it as looking at the world through a pair of Groucho glasses.
  6. Fake it. Studies show that you don’t have to feel like laughing to get the benefits! It’s just like exercise; if you work out you’ll get fitter whether you feel like working out or not. Only if you fake laughter, chances are you’ll soon feel like laughing for real.

 

Article from Caregiver.com.

 

Read more

Fly Fishing Clinic

Fly fishing is a great activity that can help improve balance, coordination and increase mobility… all important for someone with Parkinson disease!

Join us for a free fly fishing clinic on May 23 in Palmyra, WI to learn about fly fishing, equipment, casting and aquatic entomology. Then, try your hand at fly fishing for trout. Jonathan Hill, our lead instructor, was a co-facilitator of the PD Support Group in Stoughton, WI. He was diagnosed with PD in 2014, and is a life member of Trout Unlimited.

No fishing license is required. Trout Unlimited will provide all equipment. Our instructors will help you get a fly rod rigged and ready to go. Any fish caught must be released – Instructors will assist with this. If you wish to take some fish home, you can buy cleaned and processed fish at the Rushing Waters Retail Store.

We will hold the clinic RAIN OR SHINE. Please be prepared with hat or sunglasses, bug spray, sunblock, and a chair if you would like to sit.

Limited to 20 participants. Registration Required. Register HERE or call 414-312-6990.

Special Thanks to Trout Unlimited.

Fly Fishing Clinic
May 23, 2018 | 9:00am-1:00pm
Rushing Waters Fisheries Trout Farm | Palmyra, WI
FREE | Picnic Lunch Provided.

Read more