Exercise

Improving Fine Motor Skills

A loss of fine motor skills is a common symptom of neurologic conditions. Try these creative ways to improve dexterity or adapt to changes.

Eight years ago, Schuetz’s creative passions were threatened when he was diagnosed with Parkinson’s disease and began experiencing worsening tremors in his right hand. Eventually his writing diminished, as did the beautiful lettering he once was so proud of. The loss was a wake-up call, says the 66-year-old resident of Timonium, MD.

“I have a lot to lose if I let this disease take away my hand dexterity,” says Schuetz. “Not only the sense of feeling productive, but a bit of my identity, too. It’s important to keep my hand skills up to par.”

Decreased Dexterity

Parkinson’s disease, with its tremors, freezing, and stiffness, is not the only neurologic condition that can cause hand and finger difficulties like Schuetz’s. For people with essential tremor, the shaking worsens with activity. Those with multiple sclerosis (MS) often experience lack of coordination and hand weakness. Dystonia, a movement disorder that causes uncontrollable muscle contractions, can result in twisted posture and cramping, which can affect hand dexterity. Neuropathies may cause numbness and weakness. And about eight out of 10 stroke survivors experience weakness on one side of the body, including the hand, according to a 2014 study in the Journal of Neuroengineering and Rehabilitation.

For people with MS, trouble with dexterity can happen at any stage of the disease, says Michael J. Olek, DO, associate professor of neurology at the Touro University Nevada College of Osteopathic Medicine in Henderson, NV. “Patients may have trouble with handwriting, using keyboards, and preparing meals.”

Dearth of Studies

Research on how to improve fine motor skills affected by neurologic disorders is minimal, especially compared with research on aerobic exercise, says Lisa M. Shulman, MD, FAAN, distinguished professor in Parkinson’s disease and movement disorders at the University of Maryland School of Medicine.

Patients often worry more about improving their walking and balance and less about improving dexterity, Dr. Shulman says. “I think that’s because there are many workarounds for weak hands.” For example, people with poor fine motor skills can buy clothing with fewer buttons and zippers and shoes with easy fasteners, she says. They can also pick up prepared meals so they don’t have to cook.

Still, it’s important to focus on dexterity, Dr. Shulman says. She and patients like Schuetz offer the following advice for retaining dexterity or adjusting to its loss.

8 Ways To Address Dexterity

  1. Talk to your doctor. Patients are more likely to tell their doctors about problems with walking than loss of dexterity, says Dr. Shulman. “What I’ve observed is that patients who exercise are almost always using their larger muscles, especially in the lower body, when using a treadmill or stationary bike, which preserves lower body function. Meanwhile, their fine motor dexterity disproportionately worsens.” She encourages all patients to inform their neurologists and health care team about any loss of fine motor skills and ask for help in improving and maintaining function.
  2. Work with an occupational therapist. Physical therapy and speech therapy are more commonly part of a treatment plan than occupational therapy, says Dr. Shulman. “It’s important that neurologists encourage more patients to engage in occupational therapy.” It helps enhance independence, productivity, and safety in all activities related to personal care, leisure, and employment, says Kathy Zackowski, PhD, OTR, senior director of patient management, care, and rehabilitation research at the National Multiple Sclerosis Society.
  3. Consider writing aids. For many people, the simple task of signing a check or restaurant bill or writing a to-do list becomes problematic. To make writing easier, use a pen grip or fatter pens, advises Rick Schrader, 64, a former software salesman in Herndon, VA, who has hereditary ATTR amyloidosis, a rare condition that affects his nerves and hand mobility. His hands get cold easily and lose sensation, but he still balances his business checkbooks every Saturday. “I don’t write fast anymore, but if I take my time I can still write clearly.”
  4.  Write mindfully. Writing quickly and unthinkingly may result in small, cramped handwriting and tightness in your hand, said Dr. Zackowski. “Try not to rush your writing, and switch to print instead of cursive. Using lined paper provides a guide and forces you to use bigger letters, which helps keep writing more legible.” She adds that using a computer keyboard may be easier if you don’t mind typing. And for those who are used to typing but now find it difficult, many keyboard modifications are available, including a key guard that helps users press the key they want without accidentally pressing other keys.
  5. Use adaptive devices. For assistance when getting dressed, you can use reaching aids, button hooks, zipper pulls, Velcro shoe fasteners, or shoe horns, says Dr. Zackowski. To help with cooking and navigating the kitchen, she recommends tools such as nonskid placemats, utensils with oversized or angled handles, and rocking T knives, which cut food using a rocking motion. In the bathroom, Dr. Zackowski suggests getting a shower chair and a nonskid bath mat and installing grab bars. For grooming, Schrader uses an electric toothbrush and razor. Others may want to install a hands-free hairdryer on the wall or vanity.
  6. Try different utensils. Poor dexterity can make eating with a fork difficult, says Kathy Villella, who has primary progressive MS. Whenever she eats in a restaurant, Villella orders food such as ravioli that is easy to pick up with a spoon. John Martin, 82, of Independence, MO, who was diagnosed with essential tremor in 2008, uses weighted spoons and knives and eats with his left hand because his right hand is more affected by tremors.
  7. Keep fit. Staying active is the key to maintaining function and dexterity, says Carolee J. Winstein, PhD, PT, director of the motor behavior and neurorehabilitation laboratory at the University of Southern California in Los Angeles. “Work with your doctor and therapists to find a fitness and exercise plan that will help you maintain function in your hands and fingers.” Schuetz practices yoga, which he says helps him maintain strength and dexterity in his arms and hands.
  8. Improve fine motor skills. To keep his fingers flexible and loose, Schuetz kneads therapy putty, a thick Play-Doh-like paste that varies in pliability from easy to hard. In addition to practicing yoga and kneading therapy putty, Schuetz continues to draw and paint. He says gripping the pencils and paintbrushes strengthens his fingers.

Schuetz also makes rings out of spoons, a hobby he started in the 1970s. Today, it provides another way to stay physically and creatively engaged. He hopes to move beyond rings into small bronze sculptures of yoga poses. “I want to bring together my two main interests—art and yoga—and keep my hands busy and happy.”

Article from Brain & Life Magazine.

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Best Workout for Brain Health

We know that exercise is stellar for brain health, and a good sweat can even help generate new neurons in the hippocampus—aka, the brain region associated with memory, learning, and emotions. But when it comes to the different types of movement—running, squats, yoga, et al.—does one workout reign supreme?

Of course, any type of movement that gets your blood flowing is brain-healthy—we like to say here at mbg, the healthiest exercise for you is the one you love. But if neurologists Dean Sherzai, M.D., and Ayesha Sherzai, M.D., had to pick a favorite? Well, it would be stairs. 

The best exercise for brain health, according to the Sherzais. 

In terms of growing BDNF (brain-derived neurotrophic factor), a molecule that can actually grow brain cells, “leg strength is by far the most important,” notes Dean. In fact, research shows that using the legs, particularly in weight-bearing exercise, sends signals to the brain that are crucial for producing healthy neural cells. Another 2015 study showed that out of 324 healthy older women, those with stronger leg power had fewer brain changes associated with cognitive aging after 10 years. “It’s almost like bigger legs, bigger brain,” Ayesha adds. 

So what, specifically, makes stairs so sublime? Well, not only do they target leg strength (a nod to the research mentioned above), but there’s also an aerobic component to it. Many experts believe aerobic (read: cardio) exercise is the best for your brain since it increases your heart rate, which means it pumps more oxygen to your body and brain. “I think [stairs] may be one of the healthiest exercises that I can think of,” Dean says. 

How long should you climb stairs?

You may be thinking: How long should I climb stairs to reap these benefits? According to the Sherzais, any amount that gets your blood pumping is great for brain health—so the specific time may vary depending on your personal workout habits.  

Of course, you can calculate just how much your heart rate increases (with wearable monitors and the like), but in case you don’t have that tech on hand, Ayesha recommends noticing when you’re out of breath. “As soon as you feel that you have difficulty finishing a sentence, you’re panting, and you’re breaking a sweat, I think that’s a great place to be,” she notes. “That’s a great place where your BDNFs are flushing your body.” 

Although, if you do choose to climb stairs (without a machine, we should add), be super careful trotting down: “There’s more damage to the menisci and the ligaments going down,” Dean notes. So be gentle during your reps.

The takeaway. 

While the Sherzais love a good stair workout for brain health, just remember that the “healthiest” exercise is the one you love—because that means you’ll stick to it consistently. If that happens to be a nonaerobic exercise, like yoga, so be it! You can certainly find some research to tout its positive effects on the brain, too
 
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March 2021 Activity Calendar

Check out this activity calendar to keep yourself active and engaged this month!

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February 2021 Activity Calendar

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May 2020 Activity Calendar

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‘It is not hopeless’: Parkinson’s disease doesn’t stop Austin duo from making popular art

One day, Verna Earl Hamilton Grice discovered she could not walk up the driveway.

That was the first sign.

Later, she felt tremors on one side of her body.

Ten years ago, she was diagnosed with Parkinson’s disease.

That’s when she stopped painting.

“I got tired,” Verna, 88, says. “I didn’t do it for 10 years. It’s labor intensive. Susan kept on.”

That would be her daughter Susan Grice, 63, who shares Verna’s zeal for making art.

“She focused instead on trying to figure out the illness,” Susan says of her mother. “She went to support groups such as Power for Parkinson’s. They promote exercise.”

Verna: “I was just hanging on.”

Verna, a native of Lake Charles, La., nevertheless made significant progress. A return to painting has helped.

Susan: “Her doctor says she is in the top 1 percent of his patients.”

“I walk really well,” Verna says with a laugh. “If you walk well, they think you are OK. I have my ups and downs. My ups are longer than they were, because I am so busy painting these days. Just looking at the paint seems to help.”

In their airy home studio, Verna and Susan paint together on wood. They seal the paintings so they can be hung outdoors. Their subjects include images inspired by Old Masters, original ideas, nature and abstract arrangements.

As in the past, the mother-and-daughter team enjoys a steady demand for their output, which could be called garden art. They recently staged an exhibition that attracted more than 60 guests to their house and garden in Westover Hills.

“It makes me feel better, I noticed,” Verna says. “How did I start again? My dentist was going out of his way to be sweet to me — I hate going to the dentist — so I brought him one of my pictures. He loved the picture. He had to have two more. They hang in the dentist’s office for others to enjoy.”

“She came home and said, ‘Oh no. I’ve got to get painting. We’re back in business,’” Susan says. “Since then, we couldn’t stop.”

The Grice method

Susan and Verna make 24-by-24-inch paintings on 3/4-inch exterior plywood.

“It’s done directly on the wood,” Verna says. “We prime it and then seal it several times after painting.”

“It’s like making signs,” Susan says. “They last for years and years. We don’t tell the exact formula. It’s a secret. A carpenter friend makes the frames of cedar.”

Mother and daughter come to the project with similar artistic sensibilities.

Susan, former director of psychiatric nursing at Seton Shoal Creek, studied at the Glassell School of Art, the teaching institute of Houston’s Museum of Fine Arts.

As for Verna, she was artistic as a child in Louisiana. She painted a bit in high school. She followed that inclination to Mexico City, where she studied Spanish and art in 1948 and ’49.

“Diego Rivera and Frida Kahlo were very much around,” Verna says. “I remember seeing Diego’s mural at a hotel there.”

A child of the Depression, Verna did not expect much more from life than hard work.

Her father, Vernon Earl Hamilton, took whatever jobs he could land.

“I never knew what to say when they asked, ‘What does your Daddy do?’” Verna recalls. “There were so many things, since it was the Depression. I know he owned slot machines on the side. He put them in little bars around Lake Charles. He sold one to let me go to Mexico.”

Her mother, Ruth McLaughlin Grice, worked as a bookkeeper for an ice company.

“She went to work to get me braces,” Verna says. “Guess what? She was working till she retired. I never got my braces.”

Verna has one sister, Helen Ruth Garman, who at age 84 is a Ride Austin contract driver.

Even Verna’s Mexican adventure came with a practical work goal.

“I was hoping to get a job using my Spanish,” she says, “but couldn’t find one. So I worked for a construction company for a while, then went to Houston. That’s where I met my husband, a young lawyer named Harrison Marion Grice.”

The newlyweds settled down in southeastern Houston and raised three children: Susan, 63, Charles, 61, and Laurel, 54.

Verna did not stop working.

“I sold real estate for a while,” she says. “I was a bilingual secretary in Spain after my husband died and also a legal secretary. I worked for the National Treasury Employees Union and lived in Washington for eight years. I was marching with the union when the older President Bush tried to freeze employees’ salaries to pay down the national debt. I was arrested and handcuffed, stuffed into a paddy wagon and taken to jail. The one thing I remember is that the toilet in the jail is right out in the middle of the room. That’s punishment enough.”

The family moved to Austin’s Northwest Hills in Austin in 1975. She retired in 1996 as the assistant to her union’s president and purchased the Westover Hills home in 2001.

Why paint?

“I just got in the mood,” Verna says of her first adult painting 15 years ago. “I got bored with looking out at those bare fences around the patio. They needed some color. That’s when we started making groups of paintings.”

Susan started painting and selling art right after Verna started in 2004. They’ve sold more than 100 paintings, many of them at places that also sell architectural pieces or items for the garden.

Verna finds that Parkinson’s is only a partial barrier.

“With just about any disability, you can still paint,” Verna says. “If you find someone to help on some things, you can still enjoy the magic of painting.”

“You let me draw straight lines for you sometimes,” Susan interjects. “With her permission and very specific instructions, she will direct me to draw a line. It allows her to still paint, which is fantastic.”

Both Grices promote Power for Parkinson’s, the nonprofit support group that offers free exercise, dance and singing classes at locations in Austin, Round Rock, West Lake Hills and Lakeway.

“I started going when there were just a few things we could do there, and now there are hundreds of activities,” Verna says. “I swim laps. I play bocce ball. I boxed. I decided my body is not made for boxing. Age 88 is too old to dive into the mat.”

Verna does not paint to inspire others, but she’s gratified it might do so.

“I just want people to know that, at 88, you can still have some fun and enjoy life,” Verna says. “A lot of people with Parkinson’s think that this is the end. But you can slow it down. You realize how important your brain is. Don’t get me wrong. It’s a bear of a disease. But it is not hopeless. There are lots of things you can do. Do it, try it — and get creative with it.”

Click HERE to view the artwork. Article from Austin360.com.

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Heel, Toe: Walking with Mindfulness

Mindfulness isn’t difficult, we just need to remember to do it.” — Sharon Salzberg

The ability to walk is something many of us, myself included, have always taken for granted. Now that I have Parkinson’s disease (PD), something that used to come as a matter of course to me is starting to deteriorate. PD has adversely affected my left side more than my right side. I find myself tripping more, since I tend to drag my left foot.

Walking now requires my conscious thought

Going for a walk is now more of a mindful task than an exercise for me. I find it much more therapeutic to focus on how I walk and be in the present moment than to think about the future and how my PD may progress. With each step I take, I concentrate on repeating to myself, “Heel, toe.”

My stride analysis

When there was snow on the ground, I decided to compare my walking steps when I did not focus on saying “heel, toe” with those from when I did. My footprints in the snow were very telling, so I took a photograph. On the left side of the photo are my steps when I was not thinking about my stepping patterns. You might notice that both feet show a bit of a drag in the snow. On the right side of the photo, as I moved forward, I really focused on flexing both of my feet and having my heel strike first. There are no signs of drag on either foot.

Heel, Toe: Walking with Mindfulness

Am I putting too much thought into this?

Years of training to improve as a dancer and a cyclist have made analysis of my body movements come quite naturally to me. Whether it was improving my pedal stroke for more cycling power or perfecting my balance to do pirouette turns, I learned to be mindful and to be in touch with how my body was performing. Now I must use that skill to help myself be more attentive when I walk.

My neurologist says I tend to overthink things. I believe our greatest strengths can also be our greatest weaknesses. Sometimes, I do overthink, to the point of getting paralysis by analysis. However, I believe that mindful analysis of my PD symptoms (including my walking technique) is critical in helping me to create different ways of doing things that at one time (before PD) used to come as second nature to me.

Article by Jean Mellano for Parkinson’s News Today.

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“Sometimes, art can communicate what words cannot”

Framing OFF Through Art is a monthly art series inspired by the stories of people with Parkinson’s and their carers.

Each piece of art is made by artists with a personal connection to Parkinson’s, who partner up with people living with the condition to create art that symbolises one of their symptoms. The pieces focus on Parkinson’s ‘off’ episodes, which are the periods between treatment when symptoms re-emerge.

Artist Julie Beezy, known as Julie B. – who created the first piece last month – said: “I was honoured to be asked to be a part of this initiative. I am an artist and create pieces that can reflect many different meanings, so it was very special to create a piece that will, hopefully, help someone communicate something so complicated and emotional.”

“My mother has Parkinson’s. She was diagnosed about 10 years ago but keeps a lot of her feelings and symptoms about her diagnosis private. Working on this initiative really opened my eyes to what she experiences and how important communication is – with not only your healthcare team but your family and support system.”

For the initiative, Julie partnered with Steve Peters, who was diagnosed with Parkinson’s in 2012, and his wife and care partner, Leslie. They created ‘Reflections’ – a sculpture inspired by Steve’s journey with his condition.

Explaining the meaning behind her art, Julie said: “The four silhouettes represent Steve, his wife Leslie, and their two children. The tulip-covered silhouette at the center is a nod to Parkinson’s advocacy and the broader community, which are very important to the Peters family.”

Julie believes art can help people deal with their condition, especially at a time when it is difficult to verbally communicate.

“Sometimes, art can communicate what words cannot. Some aspects of Parkinson’s cannot be seen, so the emotional side of art can better communicate these symptoms. The release this artwork provides, not only creating it but also seeing it, can be beneficial.”

Taking part in the initiative has also provided Julie with a newfound understanding of her mother’s Parkinson’s experience.

“My mother kept things very private,” she said, “and after my experience with Framing OFF Through Art, I realised how lonely it can be. It is important to talk about how you are feeling with your family and care team.

“I hope creating this piece for Steve will help someone else with Parkinson’s live better and understand the importance of communication.”

To find out more about the Framing OFF Through Art initiative, created by US biotech company Acorda Therapeutics, click here.

The sculpture, titled ‘Reflections’, was inspired by Steve’s Parkinson’s journey.

Article from Parkinson’s Life.

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Turn, stop, then sit: A research-based guide for Parkinson’s patients

Tel Aviv University team studies why patients with Parkinson’s disease have difficulty transitioning from walking to sitting, leading to greater instability and falls

 

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