Brian Grant Foundation launches free PD exercise program

The Brian Grant Foundation (BGF) has launched an online training program for physical therapists, personal trainers and group fitness instructors to develop safe and effective exercise classes for people living with Parkinson disease. The program is based on research from Oregon Health & Science University’s Balance Disorders Laboratory, which shows how to slow down the mobility problems associated with Parkinson’s using a variety of physical and cognitive activities.

Parkinson’s is a degenerative, neurological disorder that affects the cells in the brain that produce dopamine, a chemical that helps initiate and control movement. Although there is no cure for Parkinson’s, studies suggest a consistent, vigorous fitness routine may improve motor symptoms common in people with Parkinson’s, such as rigidity, slow and small movements, and impaired balance and coordination, along with non-motor symptoms such as depression, anxiety and sleep difficulties.

“After being diagnosed with Parkinson’s, I looked for ways to combat the symptoms that I was experiencing while keeping my physical abilities as long as possible,” said Brian Grant, former NBA player and BGF founder. “I learned the importance of staying flexible, keeping good posture and practicing specific movements to address symptoms of the disease.”

Getting people into Parkinson’s-specific exercise programs in the early stages of diagnosis is fundamental because the sooner a person with the disease starts a workout routine, the better their chances of slowing the progression of symptoms. Any exercise is better than none, but ideally, workouts should be higher intensity and include a variety of activities that have been shown to help target the common symptoms of Parkinson’s. For example, lunges are helpful for improving small movements while yoga increases flexibility and coordination.

That’s why the Exercise for Parkinson’s Training for Professionals program is such a game-changer. Instructors will learn how to safely and effectively train people with Parkinson’s using activities that offer the greatest benefits for symptoms. And most importantly, they’ll empower their clients to stay motivated, healthy and social by giving them the chance to work out with others who have Parkinson’s disease.

BGF is recognized by the National Academy of Sports Medicine (NASM) and Athletics and Fitness Association of America (AFAA) as an approved continuing education provider. Exercise professionals certified through NASM or AFAA will receive continuing education credit for completing the online Exercise for Parkinson’s Training.

Brian Grant Foundation: Founded in 2010 by former NBA player Brian Grant, who is living with Parkinson’s, the Brian Grant Foundation provides tools to improve the well-being of people with the disease. BGF’s programs focus on exercise and nutrition to help people with Parkinson’s manage their symptoms, improve their overall health and prevent other serious illnesses.

Information from Brian Grant Foundation.

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The eyes may have it, an early sign of Parkinson’s disease

The eyes may be a window to the brain for people with early Parkinson’s disease. People with the disease gradually lose brain cells that produce dopamine, a substance that helps control movement. Now a new study has found that the thinning of the retina, the lining of nerve cells in the back of the eye, is linked to the loss of such brain cells. The study is published in the August 15, 2018, online issue of Neurology®, the medical journal of the American Academy of Neurology.

“Our study is the first to show a link between the thinning of the retina and a known sign of the progression of the disease – the loss of brain cells that produce dopamine,” said study author Jee-Young Lee, MD, PhD, of the Seoul Metropolitan Government – Seoul National University Boramae Medical Center in South Korea. “We also found the thinner the retina, the greater the severity of disease. These discoveries may mean that neurologists may eventually be able to use a simple eye scan to detect Parkinson’s disease in its earliest stages, before problems with movement begin.”

The study involved 49 people with an average age of 69 who were diagnosed with Parkinson’s disease an average of two years earlier but who had not yet started medication. They were compared to 54 people without the disease who were matched for age.

Researchers evaluated each study participant with a complete eye exam as well as high-resolution eye scans that use light waves to take pictures of each layer of the retina. In addition, 28 of the participants with Parkinson’s disease also had dopamine transporter positron emission tomography (PET) imaging to measure the density of dopamine-producing cells in the brain.

Researchers found retina thinning, most notably in the two inner layers of the five layers of the retina, in those with Parkinson’s disease. For example, for those with Parkinson’s disease, the inner most layer of the retina in one section of the eye had an average thickness of 35 micrometers (?m) compared to an average thickness of 37 ?m for those without the disease.

In addition, the thinning of the retina corresponded with the loss of brain cells that produce dopamine. It also corresponded with the severity of disease. When disability from the disease is measured on a scale of one to five, the people with the most thinning of the retina, or thickness of less than 30 ?m, had average scores of slightly over two, while people with the least thinning, or thickness of about 47 ?m, had average scores of about 1.5.

“Larger studies are needed to confirm our findings and to determine just why retina thinning and the loss of dopamine-producing cells are linked,” said Lee. “If confirmed, retina scans may not only allow earlier treatment of Parkinson’s disease but more precise monitoring of treatments that could slow progression of the disease as well.”

A limitation of the study was that the retina scans focused only on a limited area of the retina. The study was also a snapshot in time and did not follow participants over a long period of time.

The study was supported by the Seoul Metropolitan Government – Seoul National University Boramae Medical Center and the Korean Ministry of Education, Science and Technology.

Information provided by American Academy of Neurology.

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Intimacy Issues & Parkinson’s

Warning: This article contains adult-themed issues and terms.

This article summarizes a presentation on sexual disfunction by Gila Bronner, MPH, MSW, CST, Director of Sex Therapy at the SHEBA Medical Center in Israel.

Jessica made an appointment with Gila Bronner, MPH, MSW, CST, a sex therapist, to discuss a specific issue: how could she address her husband’s drooling interfering with their sex life. Even though her husband was the one living with Parkinson’s disease (PD), some symptoms affected the both of them.

Intimacy issues and sexual dysfunction is a “couple problem.” It affects both partners. One person’s sexual dysfunction often results in the same effect in their partner. For example, when a man experiences a sexual dysfunction, his partner is more likely to experience sexual dysfunction and dissatisfaction as well.

There is a high prevalence of sexual dysfunction in PD, with problems ranging from erectile dysfunction, reduced desire and frequency, vaginal dryness, orgasm difficulties and more. According to one study, people with PD rate sexual dysfunction in their top 12 most bothersome symptoms (Politis, et al., 2010). Another study cites that 41.9 percent of men and 28.2 percent of women cease sexual activity after being diagnosed with PD (Bronner, et al. 2004).

Sexual dysfunction in PD can be compounded by depression, anxiety, pain and movement-related symptoms, which can affect desire, erectile dysfunction and sexual satisfaction. Sexual dissatisfaction has been associated with movement symptoms in men, anxiety in women and depression in both genders.

As a sex therapist, Gila reminds her patients that it is important to remember that sexuality is not only about sex and orgasms; its emotional, non-sexual physical and intimate aspects play important parts. Intimate touch and sexual activity contribute to a better quality of life and health overall. They are associated with emotional and physical relaxation, better self-esteem, increased vitality and well-being, and closeness between partners.

The increase in oxytocin that comes from massage and touch can even reduce pain. Older people who continue to engage in sexual activity have better overall cognitive functioning (Hartmans, et al. 2014). Therapeutic touch has even been shown to decrease behavioral symptoms of dementia (Woods, et al. 2005).

There are many alternative intimate and sexual activities to treat sexual dysfunction, such as outercourse (other sexual activities besides sex), self-stimulation, non-demanding touch (relaxing and pleasant touch), open sexual communication, compensatory strategies and sexual aids, and erotic thoughts and fantasies.

Intimacy Tips from People with PD and Their Partners

  1. Plan sex for when movement symptoms are at a minimum.
  2. Apply oily lubricants to lessen the effects of tremor on skin.
  3. Use sexual aids.
  4. Plan positions in advance with minimized movements between positions.
  5. Use lubricants for penetration during intercourse, and be sure to read the lubricant’s instructions before you begin.
  6. Use satin sheets to ease movement.
  7. Perform intimacy training and erotic tasks.
  8. Reduce stress and burden on your partner.

“Remember that the right to share love, touch and intimate moments accompanies us along our life,” said Gila.

Information provided by PDF.

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Caregivers: Caregiving Issues Facing the Multi-Generational Family

There are many family situations today where you can find three, four or even five generations living under one roof. While the circumstances that result in multi-generational living vary from financial to health-related to simple family closeness, those who live in these types of households deal with many issues. Serving as the main caregiver for an older relative, dealing with grandchildren and having one of their own children living back at home after several years on his/her own can be a challenge for the best of families.

In dealing with your older relative, the most critical aspect is not just tending to their physical needs, but providing them with the emotional support they require as well. Often, it is coping with these emotional needs that is most time consuming and stressful. Family members often ask “How do I talk to my relative about. . . “(You fill in the blank.) The answer is “Not easily.”

Remember, your job is to help your older relative make informed, reasonable decisions for themselves, not to make the decision for them. It is also important to realize that they may be frightened about their overall condition, and that this frightened state is relayed through anger toward YOU, the main caregiver. It is crucial to keep the lines of communication open between the generations so that both of you can express your fears and concerns as honestly as possible. You may also wish to gain as much knowledge as possible regarding the older person’s condition so that you know what to expect of them now and in the future. In that way, you can let them maintain their sense of independence and well-being and provide the needed care when it becomes necessary.

Children, even at an early age, can be asked to take on family responsibilities. They can be very helpful and resourceful. They can perform everyday chores like cleaning and help in preparation of meals and laundry. They can also help Grandma or Grandpa by sitting with them, reading together or watching TV, among other things. By involving children, you are giving them an honest look into the daily caregiving process and you open the door to start a dialogue about aging issues in general.

The relationship between an older relative and a child is invaluable in that the older person provides educational and historical information that is passed on to another generation and the child can give new and fresh insight on things for the older person.

When an older relative begins to fail, either mentally or physically, it can be very confusing and sometimes frightening for a child. There are many resources geared specifically for children that explain the aging process. Children are seen as extremely therapeutic assets as families deal with the daily issues associated with the care of a relative.

Older relatives can also be an invaluable resource to their grandchildren. They can serve as educators, story tellers and, in many instances, serve as the primary providers of care to their grandchildren. Many older people end up “raising” their grandchildren due to a variety of circumstances. These older relatives struggle not only with the daily demands of care needed by their grandchildren, but also with the concerns and struggles that their own children (the grandchildren’s parents) face and their own health and financial issues.

Those who are in the “sandwich generation” often are faced with the daily demands of care needed by their parents or older relatives AND are responsible for the raising of their own children. In addition, they may have to deal with their own health and financial worries. Other responsibilities faced by this generation include the demands of a work schedule and their relationship with a spouse or significant other, in addition to their ongoing relationship with siblings and close friends.

Regardless of their age, there are many instances where the main caregiver in the family refuses to acknowledge that they can’t handle the load. They are too caught up in the daily grind that they don’t recognize the warning signals, which can include extreme fatigue, lack of rest, irritability, and frustration over lack of free time. Letting others know your feelings and that you need help is crucial to the caregiver’s mental and physical well-being.

It is also important to negotiate the exact roles of each family member in terms of providing care. Some may feel more comfortable with hands-on duties – others may want to only focus on household chores or helping with transportation or financial and legal issues.

There are many instances where the care receiver is very stubborn and resistant to any help, even from family members. In these cases you need to be FIRM in expressing the reality of the situation and that the person needs assistance. It is particularly important for those living in multi-generational households who often are providing 24 hours a day/7 days a week care to have an occasional respite break.

With family members living longer, many individuals are faced with the prospect of being a caregiver for a significant number of years. More and more families are opting to live in a mutli-generational household for a variety of reasons, including providing care for a loved one. It is important for the family to recognize that, in many cases, they will not be able to tend to all the needs of their relative, and that they will have to rely on others for occasional support. The support is available – just ask.

Information from Today’s Caregiver.

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