Awareness

12 Medication Management Tips That May Save Your Life

What can be done to help older adults take medications safely? Take care to avoid some of the more common medication mistakes, such as taking drugs incorrectly or taking more than is prescribed. Pill dispensers, organizers and even reminder services can also be useful tools for some.

That being said, nothing substitutes for responsible caregiver advocacy and being proactive about the drugs we and our loved ones are taking.

Here are some other tips to keep in mind:

1. Ask your provider if the dosage is age-appropriate.

Because of the way our bodies metabolize various drugs as we get older, seniors can be more sensitive to some drugs and less sensitive to others. They are also more likely to experience adverse effects. Double-check with your doctor or pharmacist to ensure that the dosage on the prescription is age-appropriate, and ask if it’s advisable to start with a lower dose and taper upwards.

2. Be aware of medications deemed unsafe for seniors.

The Beers Criteria for Potentially Inappropriate Medication Use in Older Adults, put together by the American Geriatric Society, is a list of medications that older adults should avoid or use with caution. Some pose a higher risk of side effects or interactions, while others are simply less effective.  For instance, commonly prescribed sedatives in the benzodiazepine category, like diazepam (Valium), are on the “avoid for certain conditions” list because older adults may be more sensitive to these drugs. Ask your pharmacist if any of your loved one’s medications are on the caution list, and whether you should be concerned.

3. Bring a medications list — or the medications themselves — to the doctor with you.

Take your list of prescription medications —  a list of over-the-counter drugs and any herbal supplements you might be taking — and bring it to the doctor’s office with you, or to a pharmacist. The more information your provider has, the more accurately they can pinpoint any potential adverse effects or drug interactions.

4. Check on prescriber behavior in Prescriber Checkup.

Rather alarmingly, Medicare may not monitor prescription safety as effectively or as closely as we might like, as noted in a ProPublica report. “In 2010 alone, health-care professionals wrote more than 500,000 prescriptions for the drug [carisoprodol] to patients 65 and older,” says the report — a drug that was pulled from the European market in 2007 and is on the Beers caution list. If you have concerns about a provider, or if you simply want more information about the drugs prescribed in your area, check ProPublica’s online Prescriber Checkup tool.

5. Closely monitor medication compliance in the cognitively impaired.

If your loved one shows signs of confusion about their medications, or has been diagnosed with cognitive impairment, Alzheimer’s disease, or another form of dementia,  do not allow them to manage or take their own medications. If they are simply having trouble tracking their medications, a reminder system may be helpful, but the situation is more serious if your loved one is cognitively impaired. Taking medications incorrectly can be harmful or fatal.

6. Create and maintain an up-to-date medication list.

American Nurse Today says, “keep an accurate list of all medications, including generic and brand names, dosages, dosing frequency and reason for taking the drug.” This can help reduce the risk of polypharmacy.

7. Get a second opinion if you are uncertain.

Not all providers are alike, and there are, unfortunately, some doctors who prescribe medications inappropriately, in excess, or for unapproved uses. If you are concerned about a prescription or a diagnosis, don’t be afraid to seek out a second opinion.

8. Know the side effect profile of your medications.

Knowing the potential side effects and interactions can help you stay alert to any health changes that may occur in response to a new medication or combination of medications. If you do notice health changes, contact a physician right away. Some side effects can mimic other health conditions, including dementia, so make sure to bring a list of your medications to every doctor visit. This will help the provider properly diagnose the problem — and help the patient avoid unnecessary or dangerous medications.

9. Make sure the pharmacy label says why you are taking the prescription.

This is particularly important for older adults who are taking multiple medications, to ensure that they know what each medication is for and how to take it properly. It can also help caregivers police whether their loved one is being given too many medications to treat the same issue, or whether a less scrupulous provider has prescribed a drug for a purpose it wasn’t intended to treat.

10. Minimize the number of providers and pharmacists you use.

Keeping the number of doctors and pharmacies to a minimum is better for you and better for the providers who must coordinate care. “The primary-care provider and specialists must maintain good communication with each other to prevent or minimize problems,” says American Nurse Today. They also advise people to “use only one pharmacy to obtain medications; this adds another level of review to help ensure appropriate dosage and reduce the risk of adverse drugs effects and interactions.”

11. Talk to the pharmacist and ask questions.

If you have any concerns at all about the combination of medications you or your loved one is taking, or how a new medication will affect you, ask your doctor or pharmacist. Learn about the potential dosage, proper storage, side effects and anything else that will help you take medications correctly. You should also talk to your provider if you are thinking of stopping a medication.

12. Tell your provider about any previous adverse drug effects.

This one might go without saying, but if you or your loved one has had a bad reaction to any medication in the past, let your doctor and pharmacist know.

 

Article from A Place for Mom.

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Be a Savvy Science News Consumer

News is everywhere, all the time. It overtakes Facebook pages, overflows email inboxes and blasts from the television. We’re inundated with information and, unfortunately, often misinformation as well. But separating the two doesn’t have to be daunting or time consuming. Start with a small but healthy dose of skepticism: Don’t believe everything you read or hear. If it sounds too good to be true, it probably is.

Then, consider these five tips:

  • Go to the original source.
    Find out where the information was published. Was it a well-respected, peer-reviewed journal, such as Nature, Science or Movement Disorders? Or was it in a newer journal that is not widely recognized by the scientific community? “Peer review” is a form of quality control, and means experts assess and approve the research.
  • Compare news coverage.
    See if and how other sites are reporting the information. Are they communicating similarly across the board or are there competing views?
  • Dig deeper.
    Don’t take everything at face value. Figure out who is reporting and why. Is there an underlying motivation, such as profit seeking (if a product is being sold, for example), a political agenda or desire for sensationalism?
  • Put news in context.
    Look to trusted sources, such as your physician or credible organizations, for the facts. Many sites, including The Michael J. Fox Foundation, blog about breaking news. Some, such as healthnewsreview.org, rate news reports on how comprehensively they inform the reader.
  • Develop a checklist to evaluate news.
    Create a set of criteria or questions you can use to gauge the accuracy of news stories. Make a list of red flags, such as words like “miracle cure,” that give you reason to pause.

Stay on top of the news by reading regularly and asking questions. Follow sites you trust or sign up for email alerts. Last, but perhaps not least, think twice before you forward an email or share a Facebook post. Make sure the information you pass on is credible — word can spread like wildfire on social media.

 

Article from Michael J. Fox Foundation for Parkinson’s Research.

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WPA Open – Thank you!

WPA hosted our 6th Annual WPA Open Against Parkinson Disease on September 12, 2017 at The Legend of Merrill Hills in Waukesha, WI. This golf outing and dinner are the only fundraiser WPA coordinates, and the money raised supports outreach, education and services to people with Parkinson disease, their caregivers, family members, and health professionals.

Thank you to Financial Strategies, Inc., and HeatTek, Inc., our presenting sponsors, as well as all of the sponsors who made this event a success. To see photos from the day, click here.

One of the highlights of the outing this year was having Patrick Pelkey with us. Patrick is a Parkinson’s Support Group leader, and he is a woodcarver. He spent the day carving these beautiful “comfort birds” that we auctioned off. Patrick has Parkinson’s, and he has found that when he starts carving, his tremors subside.

The smooth texture and beautiful wood have a calming effect, and Patrick is proud to share his talents with children and adults who need comforting.

Thanks to all who supported the WPA Open!

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People with Parkinson’s should be monitored for melanoma, study finds

People with the movement disorder Parkinson’s disease have a much higher risk of the skin cancer melanoma, and vice versa, a Mayo Clinic study finds. While further research is needed into the connection, physicians treating one disease should be vigilant for signs of the other and counsel those patients about risk, the authors say. The findings are published in Mayo Clinic Proceedings.

Overall, patients with Parkinson’s were roughly four times likelier to have had a history of melanoma than those without Parkinson’s, and people with melanoma had a fourfold higher risk of developing Parkinson’s, the research found.

Medical experts have speculated about the relationship between Parkinson’s and melanoma for decades, with varying conclusions, the Mayo researchers note. Several studies have suggested levodopa, a drug for Parkinson’s, may be implicated in malignant melanoma, but others have found an association between the two diseases regardless of levodopa treatment, they add.

“Future research should focus on identifying common genes, immune responses and environmental exposures that may link these two diseases,” says first author Lauren Dalvin, M.D., a Mayo Foundation Scholar in Ocular Oncology. “If we can pinpoint the cause of the association between Parkinson’s disease and melanoma, we will be better able to counsel patients and families about their risk of developing one disease in the setting of the other.”

The Mayo study used the Rochester Epidemiology Project medical records database to identify all neurologist-confirmed Parkinson’s cases from January 1976 through December 2013 among Olmsted County, Minn., residents. The study examined the prevalence of melanoma in those 974 patients compared with 2,922 residents without Parkinson’s. They also identified 1,544 cases of melanoma over that period and determined the 35-year risk of Parkinson’s in those patients compared with the risk in the same number of people without melanoma.

The results support an association between Parkinson’s disease and melanoma, but argue against levodopa as the cause, the researchers conclude. It is likelier that common environmental, genetic or immune system abnormalities underlie both conditions in patients who have both, but more research is needed to confirm that and refine screening recommendations, they say.

In the meantime, patients with one of the two diseases should be monitored for the other to help achieve early diagnosis and treatment, and they should be educated about the risk of developing the other illness, the researchers say.

The study’s senior author is Jose Pulido, M.D., an ophthalmologist at Mayo Clinic in Rochester, Minnesota, who treats eye melanoma.

 

Article from Science Daily.

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Support Group Facilitator Training

Our Symposium draws attendees from far and wide to learn more about Parkinson’s treatments and resources, and to connect with others who have PD. Many attendees are involved in one or more support groups, so for the last several years, WPA has led a training for support group facilitators on the Thursday before the Symposium.

One of the most important goals of this year’s facilitator training was to hear directly from the facilitators on how things were going in their groups and to identify ways in which WPA can best support their efforts. Stemming from that discussion, here are some important ways in which WPA expects to increase our partnerships with these facilitators and the groups they lead:

  • Creation of a speaker’s bureau in order to simplify the often challenging process of getting PD experts to attend group meetings.
  • Step up our efforts to assist groups to publicize their meetings and reach potential new members.
  • Check in with group facilitators more regularly to hear how things are going, see if they currently need any assistance from WPA, and share their efforts with WPA’s “audience”.
  • Explore ways where we can more often bring together facilitators to exchange ideas and challenges and learn from the best teachers – each other!
  • Develop publications and programming to better serve caregivers, those newly diagnosed with PD and the young onset community.
  • Formalize a grant program to provide small financial support that would have a big impact on the effectiveness of groups and the quality of life of their members.

We are so grateful for the commitment of these support group facilitators to their groups and to WPA!

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31st Annual Parkinson Disease Symposium | June 23, 2017

WPA will host its 31st Annual Parkinson Disease Symposium on Friday, June 23, 2017 at Country Springs Hotel & Conference Center in Pewaukee, Wisconsin.

Beginning at 8:00am, attendees can check in and visit with vendors at the Resource Fair where health and community agencies will display valuable information throughout the day. Beginning at 9:00am, the first main session will be “Understanding Parkinson Disease from a Scientific Perspective”, presented by Giuseppe P. Cortese, PhD, Postdoctoral Research Associate, Department of Neurology, University of Wisconsin-Madison. The morning breakout sessions will follow Dr. Cortese’s interactive presentation, and participants will choose from three options: “Caregivers: Being prepared for an emergency”, “Grieving ‘life as we have known it’”, and a Panel on PD exercise programs.

During lunch, the resource fair will again be open for participants. After lunch, the afternoon breakout sessions will include “Are you caring too much and laughing too little?”, “Causes and prevention of falls” and “Exercise: A targeted attack on Parkinson’s.” The closing session for all attendees will be “Nutrition for Parkinson Disease” presented by Michelle McDonagh, RD, CD, Froedtert & The Medical College of Wisconsin. The Symposium will conclude by 3:30pm.

The registration fee is $30 per person and includes educational materials, continental breakfast, and lunch. To register, CLICK HERE or call our office at 414-312-6990. Registration is required and must be received by Wednesday, June 14.

The event is sponsored by Abbvie, Medtronic and US WorldMeds.

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How Google Glass can help people with Parkinson’s

Moving Through Glass, an experimental app for Google Glass, offers people with Parkinson’s dance-based visual and musical cues routines to help them move and exercise.

http://money.cnn.com/video/technology/2015/06/09/google-glass-app-for-people-with-parkinsons.cnnmoney/

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Study Making Strides Toward Parkinson’s Biomarker

At the current time, there is no identified biomarker for Parkinson’s disease (PD). In other words, there is no objective measure — no lab or imaging test, for example — that can tell whether a person has PD, what type of motor and non-motor symptoms will predominate and how those symptoms will change over time.

Having a biomarker for Parkinson’s would both inform clinical care and accelerate research. A key potential biomarker is alpha-synuclein, the sticky protein that clumps in the brains of people with PD. These protein clumps — called Lewy bodies — are a hallmark of the disease thought to cause damage or death to dopamine-producing brain cells. Researchers can’t currently visualize alpha-synuclein in the brains of people with PD while they’re living. (This is, however, a priority area for the Foundation and MJFF is funding efforts to develop an agent to image alpha-synuclein in the brain.) They can, however, measure the protein in several areas outside of the brain, as alpha-synuclein is found throughout the body.

Researchers haven’t yet determined the optimal location(s) or method(s) to sample alpha-synuclein. To meet this need, in 2016, MJFF launched the Systemic Synuclein Sampling Study (S4), an observational clinical study involving 60 people at varied stages of Parkinson’s disease and 20 healthy volunteers. A new report, published in Biomarkers in Medicine, details the study’s procedures and goals. The article describes the standardized collection and analysis protocols used to measure alpha-synuclein in each participant’s spinal fluid, saliva and blood, as well as their skin, colon and salivary gland tissues.

S4 is the first study to evaluate alpha-synuclein in multiple body fluids and tissues within the same person and across a population of people at various points in PD. These results may lead to recommendations for optimal alpha-synuclein measurements in clinical trial participants as well as an understanding of how alpha-synuclein changes throughout the disease course.

As the study authors write, “The development of a peripheral alpha-synuclein biomarker would provide a valuable tool for confirming the diagnosis of PD, and possibly identification of the disease in its earliest stages, and provide a potential means of monitoring efficacy of potential disease modifying agents.”

A tool that could facilitate diagnosis and gauge the impact of therapies in development would truly change the way we’re able to conduct research and how quickly we can move therapies through the pipeline. That’s why finding a biomarker and research such as this are so critical.

Visit Fox Trial Finder to learn more about how you can participate in S4 and other Parkinson’s research studies.

https://www.michaeljfox.org/foundation/news-detail.php?mjff-study-making-strides-toward-parkinson-biomarker

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April is Parkinson Awareness Month

Nearly one million Americans live with Parkinson’s – more than Multiple Sclerosis, ALS, and Muscular Dystrophy combined. Over 20,000 Wisconsinites have been diagnosed with the disease.

Parkinson disease is a movement disorder, characterized by four key motor symptoms: tremor, muscle rigidity and stiffness, slowness of movement, and impaired balance and coordination. As you know, PD is much more than just a movement disorder. Non-motor symptoms of this disease may include dementia or confusion, fatigue, sleep disturbances and depression.

While the disease process may begin years earlier, the average age of diagnosis for PD is 60, but many individuals are diagnosed in their 50s and 40s, or even younger. It is estimated that 60,000 Americans are newly diagnosed each year.

Like many other neurological disorders, the causes of PD are not known, but both environmental and genetic factors are thought to be involved. There currently is no cure for PD, but numerous medications and other treatment options are available to improve symptoms and the quality of life for people with this disease and the increased pace of new research offers great hope for future treatment and a cure.

We invite you to use the month of April to reach out to the people around you. Talk about your disease. It isn’t always easy, but many people don’t understand what a person with Parkinson’s goes through every day.

Connect with WPA on how to get involved in the work we are doing. Join us for an educational program or find a support or exercise group in your area.

PD is a movement disorder… so let’s join together and GET MOVING!

WPA & You: Moving Forward Together.

 

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Students developing invention to help Parkinson’s Patients

Last fall, WPA was contacted by a group of Project Lead The Way students from Catholic Memorial High School in Waukesha, WI. The students were tasked with “finding a problem they could solve.” Two of the students have seen the challenges of Parkinson’s tremor with their grandparents, so the group decided to work on a product to help people with PD.

WPA invited the group to attend our Brookfield Support Group to present their ideas and ask for feedback from people who would actually use this product. This was a great opportunity for WPA to bring together different generations to talk about a serious everyday challenge we see. We have invited the students to come back and share their prototype once they have it!
Click here to view an article from the Waukesha Freeman Newspaper.
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