Life

Microsoft shows off watch that quiets Parkinson’s tremors

SAN FRANCISCO — Tech company developer conferences always feature a wacky demo or three.

But at Build 2017 in Seattle Wednesday, Microsoft went for the waterworks at the conclusion of CEO Satya Nadella’s keynote address: it showcased a prototype watch that temporarily eliminated the arm shaking that often plagues those suffering from the neurological disease Parkinson’s.

After a speech that both heralded and warned about coming leaps in technological power, Nadella screened a video that told the story of two British Microsoft Research employees, Haiyan Zhang and Nicolas Villa, who developed the tremor-interrupting device for a BBC documentary, The Big Life Fix.

Working with graphic designer and Parkinson’s sufferer Emma Lawton, 32, the researchers developed a watch — which they named Emma — that, according to Microsoft, “vibrates in a distinctive pattern to disrupt the feedback loop between brain and hand.”

The video showed Lawton trying to draw a square with her shaky right hand, and then again, wearing Emma. Watson erupts in tears as she calls her mother to say this is the first time she’s been able to write her name in ages.

When the lights went up, Nadella welcomed both Lawton and engineer Zhang on stage, thanking them for showing that thanks “developers can have impact.”

Emma Watch remains a prototype, Microsoft says, but the developers are working with a neuroscience research team to undertake trials with a small group of Parkinson’s sufferers.

The watch works through a combination of sensors and AI (artificial intelligence) techniques to potentially detect and monitor symptoms like tremors, stiffness and instability, among others, according to Microsoft. “Once these symptoms can be identified and measured, it’s possible to develop technology and devices that help humans manage their symptoms. AI is used to classify the sensor information and elicit real-time responses on small devices like wearables.”

Microsoft stresses that Emma Watch is not a cure for the disease, which afflicts 10 million people. “Rather, its technology has the potential to help Parkinson’s patients manage symptoms that impede regular functions. The goal of further research is to determine whether Emma Watch could help other people with similar Parkinson’s symptoms.”

https://www.usatoday.com/story/tech/talkingtech/2017/05/10/microsoft-shows-off-watch-quiets-parkinsons-tremors/101517718/

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Could Parkinson’s Disease Start in the Gut?

Parkinson’s disease may start in the gut and spread to the brain via the vagus nerve, according to a study published in the April 26, 2017, online issue of Neurology®, the medical journal of the American Academy of Neurology. The vagus nerve extends from the brainstem to the abdomen and controls unconscious body processes like heart rate and food digestion.

The preliminary study examined people who had resection surgery, removing the main trunk or branches of the vagus nerve. The surgery, called vagotomy, is used for people with ulcers. Researchers used national registers in Sweden to compare 9,430 people who had a vagotomy over a 40-year period to 377,200 people from the general population. During that time, 101 people who had a vagotomy developed Parkinson’s disease, or 1.07 percent, compared to 4,829 people in the control group, or 1.28 percent. This difference was not significant.

But when researchers analyzed the results for the two different types of vagotomy surgery, they found that people who had a truncal vagotomy at least five years earlier were less likely to develop Parkinson’s disease than those who had not had the surgery and had been followed for at least five years. In a truncal vagotomy, the nerve trunk is fully resected. In a selective vagotomy, only some branches of the nerve are resected.

A total of 19 people who had truncal vagotomy at least five years earlier developed the disease, or 0.78 percent, compared to 3,932 people who had no surgery and had been followed for at least five years, at 1.15 percent. By contrast, 60 people who had selective vagotomy five years earlier developed Parkinson’s disease, or 1.08 percent. After adjusting for factors such as chronic obstructive pulmonary disease, diabetes, arthritis and other conditions, researchers found that people who had a truncal vagotomy at least five years before were 40 percent less likely to develop Parkinson’s disease than those who had not had the surgery and had been followed for at least five years.

“These results provide preliminary evidence that Parkinson’s disease may start in the gut,” said study author Bojing Liu, MSc, of the Karolinska Instituet in Stockholm, Sweden. “Other evidence for this hypothesis is that people with Parkinson’s disease often have gastrointestinal problems such as constipation, that can start decades before they develop the disease. In addition, other studies have shown that people who will later develop Parkinson’s disease have a protein believed to play a key role in Parkinson’s disease in their gut.”

The theory is that these proteins can fold in the wrong way and spread that mistake from cell to cell.

“Much more research is needed to test this theory and to help us understand the role this may play in the development of Parkinson’s,” Liu said. Additionally, since Parkinson’s is a syndrome, there may be multiple causes and pathways.

Even though the study was large, Liu said one limitation was small numbers in certain subgroups. Also, the researchers could not control for all potential factors that could affect the risk of Parkinson’s disease, such as smoking, coffee drinking or genetics.

The study was supported by the Swedish Research Council for Health, Working Life and Welfare, the Parkinson Research Foundation in Sweden, and the U.S. National Institutes of Health.

To learn more about Parkinson’s disease, visit www.aan.com/patients.

The American Academy of Neurology is the world’s largest association of neurologists and neuroscience professionals, with 32,000 members. The AAN is dedicated to promoting the highest quality patient-centered neurologic care. A neurologist is a doctor with specialized training in diagnosing, treating and managing disorders of the brain and nervous system such as Alzheimer’s disease, stroke, migraine, multiple sclerosis, concussion, Parkinson’s disease and epilepsy.

For more information about the American Academy of Neurology, visit http://www.aan.com or find us on Facebook, Twitter, Google+, LinkedIn and YouTube.

http://www.newswise.com/articles/could-parkinson-s-disease-start-in-the-gut

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31st Annual Parkinson Disease Symposium | June 23, 2017

WPA will host its 31st Annual Parkinson Disease Symposium on Friday, June 23, 2017 at Country Springs Hotel & Conference Center in Pewaukee, Wisconsin.

Beginning at 8:00am, attendees can check in and visit with vendors at the Resource Fair where health and community agencies will display valuable information throughout the day. Beginning at 9:00am, the first main session will be “Understanding Parkinson Disease from a Scientific Perspective”, presented by Giuseppe P. Cortese, PhD, Postdoctoral Research Associate, Department of Neurology, University of Wisconsin-Madison. The morning breakout sessions will follow Dr. Cortese’s interactive presentation, and participants will choose from three options: “Caregivers: Being prepared for an emergency”, “Grieving ‘life as we have known it’”, and a Panel on PD exercise programs.

During lunch, the resource fair will again be open for participants. After lunch, the afternoon breakout sessions will include “Are you caring too much and laughing too little?”, “Causes and prevention of falls” and “Exercise: A targeted attack on Parkinson’s.” The closing session for all attendees will be “Nutrition for Parkinson Disease” presented by Michelle McDonagh, RD, CD, Froedtert & The Medical College of Wisconsin. The Symposium will conclude by 3:30pm.

The registration fee is $30 per person and includes educational materials, continental breakfast, and lunch. To register, CLICK HERE or call our office at 414-312-6990. Registration is required and must be received by Wednesday, June 14.

The event is sponsored by Abbvie, Medtronic and US WorldMeds.

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A Practical Guide on Navigating the Workplace with Parkinson’s

The decision to share a Parkinson’s diagnosis at work is personal. Many individual factors contribute to if or when you’re ready to disclose this information. And once the conversation begins, recurring discussions may be necessary as symptoms change or the disease progresses.

In collaboration with Marti Fischer, a career and professional development consultant, the Michael J. Fox Foundation for Parkinson’s Research has developed a two-part guide to help navigate the ins and outs of talking about Parkinson’s at work. Part I, “Sharing Your Parkinson’s Diagnosis at Work,” provides practical tips and tools for crafting a personalized strategy to bring Parkinson’s into the workplace. “Talking about Parkinson’s at Work,” the recently released Part II, recommends strategies for continuing conversations, handling common reactions and situations, and managing long-term professional relationships.

Download Part I and Part II of the guide.

People with young-onset Parkinson’s — diagnosed at age 50 or earlier — may be more likely to be in the workforce when diagnosed. Register for the next Third Thursdays Webinar to learn more about the challenges and treatments of young-onset Parkinson’s disease.

https://www.michaeljfox.org/foundation/news-detail.php?new-resource-practical-guide-on-navigating-the-workplace-with-parkinson&et_cid=884158&et_rid=225075821&et_lid=Talking+About+Parkinson%27s+at+Workem_cid

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The Power of Exercise Video

Exercise is one of the most important ways people with Parkinson’s can help control their symptoms. Through a grant from the Wisconsin Physical Therapy Fund, a group of physical therapists created this video. For more information on exercise groups and classes led by physical therapists, visit exercisepd.com.

 

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Recent Photos

Check out some photos from WPA staff’s recent visits to support groups and exercise classes in Wauwatosa and Lake Geneva. To see more photos, visit our Facebook page.

 

 

 

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How to Cook for a Loved One with Dysphagia

The simple act of eating is anything but for those who experience dysphagia, the medical term for difficulties swallowing or eating. Millions of Americans have the condition, especially aging adults: The U.S. Department of Health suggests that about 15% of the elderly population experiences some form of dysphagia. And for those who care for elderly adults, it may be difficult to find equally nutritious and appetizing food that can be consumed.

Caregivers may feel alone or discouraged when it comes to finding and cooking dysphagia-friendly recipes. Often, they will find themselves resorting to feeding their loved ones soft, tasteless food because it is the only thing they can swallow.

But, this is not the case, and students and faculty at Speech@NYU, the online master’s in speech pathology from NYU Steinhardt, wanted to change this mindset and provide tools so everyone can take dysphagia head on in the kitchen with “Dining with Dysphagia: A Cookbook.”

The cookbook, which includes eight recipes that elevate pureed or “mushy” food to a higher standard, focuses on all of the values that are important to those who are supporting people with dysphagia: nutrition, texture and taste. Not only is this cookbook meant to be a resource, but also the catalyst to help start a larger conversation about changing the narrative of dysphagia. In fact, this cookbook all started with the NYU Steinhardt Iron Chef Dysphagia Challenge competition, during which contestants prepared food based on recipes that are easy-to-follow and easy-to-swallow. The cookbook is a result of the event and this year’s dishes include rosemary mashed potatoes, pumpkin soup and vegetarian squash chili, just to name a few.

Here are a few tips to keep in mind when cooking for someone with dysphagia:

  • Find out their favorite recipes: Talk to your loved one and determine what their food preferences are so you can create a dysphagia-friendly version
  • Focus on diversity: Mix it up by including different ingredients and balancing tastes
  • Make it a family affair: If you are worried that someone will be embarrassed or left out because they are eating “different” foods unlike the rest of the family or group, try recipes that everyone can enjoy to make the meal experience more inclusive
  • Get creative: Need more inspiration for new recipes? Consider doing recipe “swaps” with other friends or colleagues, or experiment on your own
  • Have a candid conversation: Do not be afraid to talk openly about dysphagia; Showing your support and how understanding you are of their condition is critical

It is important to remember that food should not only nourish the body, but also the soul. No one should ever assume they have to resort to simple, “mushy” food just because it is easily consumed. There are myriad options to create delicious recipes that your loved one will enjoy, and the cookbook is just one example of this.

If you would like to learn more about dysphagia, schedule an appointment with your loved one’s general practitioner. A speech-language pathologist will also be able to discuss the condition in greater detail.

To learn more about the “Dining with Dysphagia” cookbook visit https://speech.steinhardt.nyu.edu/dysphagia-cookbook/about/.
By Erin Embry MPA/MS CCC-SLP

With a dual degree in both Communication Sciences and Disorders and Health Policy and Management, Erin Embry’s approach to teaching and leadership promotes interdisciplinary collaboration at all levels of academic, clinical and professional training. She is the Director of the Speech@NYU online MS program in Communicative Sciences and Disorders and the graduate student academic advisor.

Embry teaches courses related to the clinical process, swallowing disorders, and professional issues. She is actively involved in department and school-wide curriculum development with a focus on cultivating collaborative efforts of various disciplines in the educational and healthcare settings. With over 15 years of experience as a licensed and certified speech-language pathologist, Embry has devoted her clinical and academic career to adults with acquired brain injuries and progressive neurological diseases.

http://www.caregiver.com/articles/general/cook_for_dysphagia.htm?utm_source=Caregiver+Newsletter&utm_campaign=a38e745fb9-Caregiver_Newsletter_4_25_17&utm_medium=email&utm_term=0_8c5d5e6a5e-a38e745fb9-94169813&mc_cid=a38e745fb9&mc_eid=5f3c35a028

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