movement

Improving Fine Motor Skills

A loss of fine motor skills is a common symptom of neurologic conditions. Try these creative ways to improve dexterity or adapt to changes.

Eight years ago, Schuetz’s creative passions were threatened when he was diagnosed with Parkinson’s disease and began experiencing worsening tremors in his right hand. Eventually his writing diminished, as did the beautiful lettering he once was so proud of. The loss was a wake-up call, says the 66-year-old resident of Timonium, MD.

“I have a lot to lose if I let this disease take away my hand dexterity,” says Schuetz. “Not only the sense of feeling productive, but a bit of my identity, too. It’s important to keep my hand skills up to par.”

Decreased Dexterity

Parkinson’s disease, with its tremors, freezing, and stiffness, is not the only neurologic condition that can cause hand and finger difficulties like Schuetz’s. For people with essential tremor, the shaking worsens with activity. Those with multiple sclerosis (MS) often experience lack of coordination and hand weakness. Dystonia, a movement disorder that causes uncontrollable muscle contractions, can result in twisted posture and cramping, which can affect hand dexterity. Neuropathies may cause numbness and weakness. And about eight out of 10 stroke survivors experience weakness on one side of the body, including the hand, according to a 2014 study in the Journal of Neuroengineering and Rehabilitation.

For people with MS, trouble with dexterity can happen at any stage of the disease, says Michael J. Olek, DO, associate professor of neurology at the Touro University Nevada College of Osteopathic Medicine in Henderson, NV. “Patients may have trouble with handwriting, using keyboards, and preparing meals.”

Dearth of Studies

Research on how to improve fine motor skills affected by neurologic disorders is minimal, especially compared with research on aerobic exercise, says Lisa M. Shulman, MD, FAAN, distinguished professor in Parkinson’s disease and movement disorders at the University of Maryland School of Medicine.

Patients often worry more about improving their walking and balance and less about improving dexterity, Dr. Shulman says. “I think that’s because there are many workarounds for weak hands.” For example, people with poor fine motor skills can buy clothing with fewer buttons and zippers and shoes with easy fasteners, she says. They can also pick up prepared meals so they don’t have to cook.

Still, it’s important to focus on dexterity, Dr. Shulman says. She and patients like Schuetz offer the following advice for retaining dexterity or adjusting to its loss.

8 Ways To Address Dexterity

  1. Talk to your doctor. Patients are more likely to tell their doctors about problems with walking than loss of dexterity, says Dr. Shulman. “What I’ve observed is that patients who exercise are almost always using their larger muscles, especially in the lower body, when using a treadmill or stationary bike, which preserves lower body function. Meanwhile, their fine motor dexterity disproportionately worsens.” She encourages all patients to inform their neurologists and health care team about any loss of fine motor skills and ask for help in improving and maintaining function.
  2. Work with an occupational therapist. Physical therapy and speech therapy are more commonly part of a treatment plan than occupational therapy, says Dr. Shulman. “It’s important that neurologists encourage more patients to engage in occupational therapy.” It helps enhance independence, productivity, and safety in all activities related to personal care, leisure, and employment, says Kathy Zackowski, PhD, OTR, senior director of patient management, care, and rehabilitation research at the National Multiple Sclerosis Society.
  3. Consider writing aids. For many people, the simple task of signing a check or restaurant bill or writing a to-do list becomes problematic. To make writing easier, use a pen grip or fatter pens, advises Rick Schrader, 64, a former software salesman in Herndon, VA, who has hereditary ATTR amyloidosis, a rare condition that affects his nerves and hand mobility. His hands get cold easily and lose sensation, but he still balances his business checkbooks every Saturday. “I don’t write fast anymore, but if I take my time I can still write clearly.”
  4.  Write mindfully. Writing quickly and unthinkingly may result in small, cramped handwriting and tightness in your hand, said Dr. Zackowski. “Try not to rush your writing, and switch to print instead of cursive. Using lined paper provides a guide and forces you to use bigger letters, which helps keep writing more legible.” She adds that using a computer keyboard may be easier if you don’t mind typing. And for those who are used to typing but now find it difficult, many keyboard modifications are available, including a key guard that helps users press the key they want without accidentally pressing other keys.
  5. Use adaptive devices. For assistance when getting dressed, you can use reaching aids, button hooks, zipper pulls, Velcro shoe fasteners, or shoe horns, says Dr. Zackowski. To help with cooking and navigating the kitchen, she recommends tools such as nonskid placemats, utensils with oversized or angled handles, and rocking T knives, which cut food using a rocking motion. In the bathroom, Dr. Zackowski suggests getting a shower chair and a nonskid bath mat and installing grab bars. For grooming, Schrader uses an electric toothbrush and razor. Others may want to install a hands-free hairdryer on the wall or vanity.
  6. Try different utensils. Poor dexterity can make eating with a fork difficult, says Kathy Villella, who has primary progressive MS. Whenever she eats in a restaurant, Villella orders food such as ravioli that is easy to pick up with a spoon. John Martin, 82, of Independence, MO, who was diagnosed with essential tremor in 2008, uses weighted spoons and knives and eats with his left hand because his right hand is more affected by tremors.
  7. Keep fit. Staying active is the key to maintaining function and dexterity, says Carolee J. Winstein, PhD, PT, director of the motor behavior and neurorehabilitation laboratory at the University of Southern California in Los Angeles. “Work with your doctor and therapists to find a fitness and exercise plan that will help you maintain function in your hands and fingers.” Schuetz practices yoga, which he says helps him maintain strength and dexterity in his arms and hands.
  8. Improve fine motor skills. To keep his fingers flexible and loose, Schuetz kneads therapy putty, a thick Play-Doh-like paste that varies in pliability from easy to hard. In addition to practicing yoga and kneading therapy putty, Schuetz continues to draw and paint. He says gripping the pencils and paintbrushes strengthens his fingers.

Schuetz also makes rings out of spoons, a hobby he started in the 1970s. Today, it provides another way to stay physically and creatively engaged. He hopes to move beyond rings into small bronze sculptures of yoga poses. “I want to bring together my two main interests—art and yoga—and keep my hands busy and happy.”

Article from Brain & Life Magazine.

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Doctors Prescribing Music Therapy

Music has proven time and again to be an important component of human culture. From its ceremonial origin to modern medical usage for personal motivation, concentration, and shifting mood, music is a powerful balm for the human soul. Though traditional “music therapy” encompasses a specific set of practices, the broader use of music as a therapeutic tool can be seen nowadays as doctors are found recommending music for a wide variety of conditions.

1. Music Helps Control Blood Pressure and Heart-Related Disorders

According to The Cardiovascular Society of Great Britain, listening to certain music with a repetitive rhythm for least ten seconds can lead to a decrease in blood pressure and a reduced heart rate. Certain classical compositions, if matched with human body’s rhythm, can be therapeutically used to keep the heart under control. The Oxford University study states, “listening to music with a repeated 10-second rhythm coincided with a fall in blood pressure, reducing the heart rate” and thus can be used for overcoming hypertension.

2. Listening and Playing Music Helps Treat Stress and Depression

When it comes to the human brain, music is one of the best medicines. A study at McGill University in Canada revealed that listening to agreeable music encourages the production of beneficial brain chemicals, specifically the “feel good” hormone known as dopamine. Dopamine happens to be an integral part of brain’s pleasure-enhancing system. As a result, music leads to great feeling of joy and bliss.

It’s not only listening to music that has a positive effect on stress and depression. The Namm Foundation has compiled a comprehensive list of benefits of playing music, which includes reducing stress on both the emotional level and the molecular level. Additionally, studies have shown that adults who play music produce higher levels of Human Growth Hormone (HgH), which according to Web MD, is a necessary hormone for regulating body composition, body fluids, muscle and bone growth, sugar and fat metabolism, and possibly heart function.

For more on how music can be composed to benefit the brain, read about States of Consciousness and Brainwave Entrainment.

3. Music Therapy Helps Treat Alzheimer’s Disease

Music therapy has worked wonders on patients suffering from Alzheimer’s disease. With Alzheimer’s, people lose their capacity to have interactions and carry on with interactive communications. According to studies done in partnership with the Alzheimer’s Foundation of America, “When used appropriately, music can shift mood, manage stress-induced agitation, stimulate positive interactions, facilitate cognitive function, and coordinate motor movements.”

4. Studying Music Boosts Academic Achievement in High Schoolers

Early exposure to music increases the plasticity of brain helping to motivate the human brain’s capacity in such a way that it responds readily to learning, changing and growing. “UCLA professor James S. Catterall analyzed the academic achievement of 6,500 low-income students. He found that, by the time these students were in the 10th grade, 41.4% of those who had taken arts courses scored in the top half on standardized tests, contrasted with only 25% of those who had minimal arts experience. The arts students also were better readers and watched less television.” This goes to show that in the formative stages of life, kids who study music do much better in school.

5. Playing Guitar (and Other Instruments) Aids in Treating PTSD

The U.S. Department of Veterans Affairs shared a study in which veterans experiencing Post Traumatic Stress Disorder (PTSD) experienced relief by learning to play guitar. The organization responsible for providing guitars, Guitars For Vets “enhances the lives of ailing and injured military Veterans by providing them free guitars and music instruction.” Playing music for recovery from PTSD resembles traditional music therapy, in which patients are encouraged to make music as part of their healing process. Guitar is not the only instrument that can help PTSD. In fact, Operation We Are Here has an extensive list of Therapeutic Music Opportunities For Military Veterans.

6. Studying Music Boosts Brain Development in Young Children

research-based study undertaken at the University of Liverpool in the field of neuroscience has light to shed on the beneficial effects of early exposure to music. According to the findings, even half an hour of musical training is sufficient to increase the flow of blood in the brain’s left hemisphere, resulting in higher levels of early childhood development.

The Portland Chamber Orchestra shares, “Playing a musical instrument involves multiple components of the central (brain and spinal cord) and peripheral (nerves outside the brain and spinal cord) nervous systems.  As a musician plays an instrument, motor systems in the brain control both gross and fine movements needed to produce sound.  The sound is processed by auditory circuitry, which in turn can adjust signaling by the motor control centers.  In addition, sensory information from the fingers, hands and arms is sent to the brain for processing.  If the musician is reading music, visual information is sent to the brain for processing and interpreting commands for the motor centers.  And of course, the brain processes emotional responses to the music as well!”

7. Music Education Helps Children Improve Reading Skills

Journal Psychology of Music reports that “Children exposed to a multi-year program of music tuition involving training in increasingly complex rhythmic, tonal, and practical skills display superior cognitive performance in reading skills compared with their non-musically trained peers.” In the initial stages of learning and development, music arouses auditory, emotional, cognitive and visual responses in a child. Music also aids a child’s kinesthetic development. According to the research-supported evidence, a song facilitates language learning far more effectively than speech.

8. Listening To Music Helps Improve Sleep

According to The Center for Cardiovascular Disease in China, listening to music before and during sleep greatly aids people who suffer from chronic sleep disorders. This “music-assisted relaxation” can be used to treat both acute and chronic sleep disorders which include everything from stress and anxiety to insomnia.

9. Playing Didgeridoo Helps Treat Sleep Apnea

 

A study published in the British Medical Journal shows that people suffering from sleep apnea can find relief by practicing the Australian wind-instrument known as the didgeridoo. Patients who played the didgeridoo for an average of 30-minutes per day, 6 days per week, saw significant increases in their quality of sleep and decreases in daytime tiredness after a minimum period of 3-months of practice. Dr. Jordan Stern of BlueSleep says, “The treatment of sleep apnea is quite challenging because there is not a single treatment that works well for every patient. The didgeridoo has been used to treat sleep apnea and it has been shown to be effective in part because of strengthening of the pharyngeal muscles, which means the muscles of the throat, as well as the muscles of the tongue.”

Article from DidgeProject.com.

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Heel, Toe: Walking with Mindfulness

Mindfulness isn’t difficult, we just need to remember to do it.” — Sharon Salzberg

The ability to walk is something many of us, myself included, have always taken for granted. Now that I have Parkinson’s disease (PD), something that used to come as a matter of course to me is starting to deteriorate. PD has adversely affected my left side more than my right side. I find myself tripping more, since I tend to drag my left foot.

Walking now requires my conscious thought

Going for a walk is now more of a mindful task than an exercise for me. I find it much more therapeutic to focus on how I walk and be in the present moment than to think about the future and how my PD may progress. With each step I take, I concentrate on repeating to myself, “Heel, toe.”

My stride analysis

When there was snow on the ground, I decided to compare my walking steps when I did not focus on saying “heel, toe” with those from when I did. My footprints in the snow were very telling, so I took a photograph. On the left side of the photo are my steps when I was not thinking about my stepping patterns. You might notice that both feet show a bit of a drag in the snow. On the right side of the photo, as I moved forward, I really focused on flexing both of my feet and having my heel strike first. There are no signs of drag on either foot.

Heel, Toe: Walking with Mindfulness

Am I putting too much thought into this?

Years of training to improve as a dancer and a cyclist have made analysis of my body movements come quite naturally to me. Whether it was improving my pedal stroke for more cycling power or perfecting my balance to do pirouette turns, I learned to be mindful and to be in touch with how my body was performing. Now I must use that skill to help myself be more attentive when I walk.

My neurologist says I tend to overthink things. I believe our greatest strengths can also be our greatest weaknesses. Sometimes, I do overthink, to the point of getting paralysis by analysis. However, I believe that mindful analysis of my PD symptoms (including my walking technique) is critical in helping me to create different ways of doing things that at one time (before PD) used to come as second nature to me.

Article by Jean Mellano for Parkinson’s News Today.

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Free and inexpensive resources to help on your Parkinson’s journey

We asked, and you answered! Here are a few of your favorite FREE or INEXPENSIVE resources and tips that you have found helpful in dealing with your Parkinson’s.

Barb in Davenport: I use the CALM app on my phone. It’s not free but it is so worth it. Check it out for high quality meditations, sleep stories, daily inspiration, etc.

Nancy in Mount Pleasant: Subscribe to “Brain & Life” magazine. It’s helpful and free!

Bruce in Kaukana: I have Parkinson’s and we use a free app called Life360. It allows you to add family members and you can see/follow them as they are driving or riding in a vehicle. It gives some piece of mind knowing you can see where a person is while driving. You can add your aging parents, young drivers, drivers with or without a disability.

Anna in Milwaukee: The “Every Victory Counts” manual from Davis Phinney Foundation. The digital version is free, or the print version is $5.50. The Parkinson’s Foundation offers their free Aware in Care kit as well.

Joel in Fond du Lac: The Parkinson’s Playbook by Robert W. Smith. It’s available on Amazon for $14 and includes some tips on lifestyle improvements and healing techniques.

Jason in Whitewater: WPA’s program last week in Janesville was great, and connected me to a local gym.

Susan in South Beloit: I used a music stand to put my heavier books on when I’m reading. Also, I go to the YMCA several times a week to take water exercise class. It’s refreshing, easy on my joints and a great way to make new friends.

Have more ideas to share? Email [email protected] and watch for a future article!

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Virtual reality reduced PD symptoms for 10 people

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Turn, stop, then sit: A research-based guide for Parkinson’s patients

Tel Aviv University team studies why patients with Parkinson’s disease have difficulty transitioning from walking to sitting, leading to greater instability and falls

 

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Digital Management of Parkinson Disease: Is Technology the Future?

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How Music Transforms a Man with PD

View the video HERE.

Before Parkinson’s disease changed his life, Larry Jennings loved to sing, dance and play his guitar. A decade after his diagnosis, the 73-year-old Oklahoma man is once again able to dance with his wife, thanks to the therapeutic power of music.

Jennings’ remarkable improvement was captured on video that has gone viral since his physical therapist Anicea Gunlock shared it on Facebook. The video at first shows Jennings struggling to walk around his home in Hartshorne, Okla., even with the help of a walker.

But when Gunlock started playing music on her cellphone, Jennings’ stride immediately improved. Within a couple of minutes, Jennings was able to let go of his walker and even lead Gunlock in a dance.

“I’d never seen anything like it,” Gunlock told CTVNews.ca in a phone interview Thursday.

Gunlock explained how, after her very first session with Jennings yielded no real improvements in his gait, she went home and started researching therapies for Parkinson’s disease, a neurodegenerative disorder that can severely limit a patient’s movements.

She came across a study that used music to help patients improve their gait and decided to try it out with Jennings. Gunlock said she spent a considerable amount of time finding the right song – nothing too fast or too slow. She eventually settled on “Good Ole Boys Like Me,” a 1979 country song by Don Williams.

“When I went back a couple of days later to do it with Larry, it was just astounding,” Gunlock said. “Literally, it was instantaneous results.”

At one point in the video, Jennings is also seen singing along to “Good Ole Boys.” Since Jan. 5, the video has garnered more than nine million views.

“I’m really happy that it has been seen by so many people,” Jennings’ wife Kathy said, describing how everyone was “in tears” when her husband danced across the floor for the first time.

Now, “he can dance with whoever is around,” Kathy told CTVNews.ca. “We danced all over.”

She said caregivers often get discouraged as Parkinson’s disease continues to rob their loved ones of movement and speech. But she’s always been hopeful that her husband’s condition would improve.

“With his illness, you have to not give up,” she said. “We’re hoping that he’ll get even better.”

The power of music and dance

Music and dance have long been used to help Parkinson’s patients improve their movements and motor skills. A number of Canadian researchers have been involved in the global effort to better understand the therapeutic benefits of music for people like Jennings.

“Right now, nobody has any idea what is going on in the brain to make this happen,” said Jessica Grahn, a professor at Western University in London, Ont., who has been researching the way music and rhythm are processed in the brains of people with movement disorders like Parkinson’s.

She said there seems to be “great variability” in how Parkinson’s disease patients respond to music. Some, like Jennings, show an instant response, while others show little to no improvement.

“One of the things we’re really interested in is…what is it that makes music effective for any given patient?” Grahn told CTVNews.ca.

One of the working theories, she said, is that music enables the brain of a Parkinson’s patient to “bypass the faulty circuitry” caused by the disease. Many patients struggle with internally-generated movements — trying to get up and walk across the room, for example– only to realize that their brain is not receiving the signal. But reflexive movements, such as catching a ball thrown in their direction or dancing to music, seem to remain intact, Grahn said.

For Alice-Betty Rustin, who was diagnosed with Parkinson’s disease six years ago, music and dance programs have been more than just physical therapy.

“It’s also a great social (activity),” the 79-year-old Toronto-area resident said. She has seen many other people with Parkinson’s benefit greatly from dance programs, including one offered at Canada’s National Ballet School.

Gunlock, the physical therapist in Oklahoma, said she decided to share her video online in hopes it would help other Parkinson’s patients and the therapists who work with them.

“The response has been amazing,” she said.

View the video HERE.

Article from CTVNews.ca.

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How to be a Parkinson’s Caregiver

As any caregiver knows, Parkinson’s disease is both chronic and progressive. It persists over a long period of time and the symptoms worsen.  Often the disease has been present for many years before active care even is necessary.  This fact alone can bring many challenges along the way.  A loved one secretly may have adapted their life to this condition, hiding any symptoms.

When the time for care arises, a caregiver first has to take inventory of what is working and what isn’t.  A caregiver may have believed their loved one was perfectly fine, and come to realize the truth is far from that. A caregiver for someone with Parkinson’s must be very organized, informed, patient and able to modify daily life to any situation that may arise.

In the latter stages, it’s important for a caregiver to take a step back and not become totally entrenched in the caregiving and uninvolved in their own life. Since Parkinson’s can persist for many years, by the time the latter stage arrives, a seasoned caregiver will be an “old pro.”

Managing Symptoms

There is no “across-the-board” standard for how Parkinson’s affects any given patient. Just as everyone is different, every person’s reaction will be unique. The most common symptoms are tremors, muscle stiffness and slow movement.  These symptoms intensify as the disease progresses and alone can cause problems in daily living activities. A caregiver must be constantly evaluating what condition their loved one is in. Parkinson’s is unpredictable and a loved one may be resistant to take assistance for as long as they can hold out. This makes caregiving more complicated. However, it is their caregiver’s responsibility to help keep them, above all, safe in any environment. One important tip is to initially ask a loved one what they need, and not assume. During the latter stages, a caregiver should be familiar enough to anticipate and prepare for a loved one’s needs.

In the latter stage of the disease, movement itself becomes nearly impossible. A simple task as dressing could take a person with Parkinson’s disease literally all day to accomplish. Walking is very slow, if at all. A lack of balance causes frequent falls and automatic movements, like the swinging of arms when walking, disappear.  A caregiver should try to not be frustrated, but instead, be patient, and respond with love and humor.

As the disease progresses, communication difficulties and heightened anxiety become more prevalent. In the early stages, a loved one is able to hide symptoms easily, but as the tremors and stiffness worsen, a joke about getting older may be a good cover-up for the fact that daily duties are becoming harder and harder to handle.

What can a caregiver do? Get help!

With a loved one in the advanced stages of Parkinson’s disease, it is nearly impossible to handle it alone. Whether in-home care or out-of-home, help is necessary.  Whether in-home or a permanent move, options are available for caregivers to find some relief.  There are many kinds of caregivers, from live-in spouses to long-distance children. No matter the caregiver, a support system is mandatory!

You, the Caregiver

The National Parkinson Foundation’s publication “Caring and Coping” divides caregivers into these categories:

  • Stage One: The Expectant Caregiver
  • Stage Two: The Freshman Caregiver
  • Stage Three: The Entrenched Caregiver
  • Stage Four: The Pragmatic Caregiver

The first two stages are filled with learning. Once a caregiver is entrenched, they are knowledgeable, prepared and “in the trenches.” A caregiver in Stage Three “gets it.” The final stage, the pragmatic caregiver, has been in the thick of it for more than five years and through it all. They know what works and what doesn’t. They see Parkinson’s disease as what is was and what it has become. They laugh at things other family members may find sensitive and painful. They have become practical, realistic and are also experiencing much personal growth.

In the latter stages of Parkinson’s, it may be hard for a caregiver to find happiness in the simple moments. The major joy-killers are the everyday tasks like bathing, dressing and toileting. It’s hard to remember who a loved one was as a person pre-advanced Parkinson’s. Sometimes taking a minute to tell jokes, share stories and enjoy a fun activity will bring back the feelings of father/son, mother/daughter or husband/wife, whatever the situation.

The National Parkinson’s Foundation tells caregivers to “hang onto your sense of self.” Regular activities and routines are also important to keep, as much as possible. Emotional and physical exhaustion will only lead to more exhaustion. Finally, a caregiver needs to see themselves beyond the car giving role. It’s essential to remember individual life goals, independent of the caregiving demands. A caregiver must take time to maintain social contacts and actually schedule respite time.

Paperwork

Paperwork can be overwhelming for the average person. For a caregiver of someone with Parkinson’s, it can be frustrating and time consuming. It’s easy to lose sight of the goal and just rush to complete the tasks. From applying for benefits to doctor’s visits and financial records, it’s a very big task to take on for any caregiver.

The National Parkinson Foundation suggests caregivers take a look at the situation as a whole, using a “big picture” approach. Seeing options as working together enables caregivers to make rational, educated decisions. This frame of mind is especially important when deciding legal, financial and medical decisions for a loved one.  Take a step back, a deep breath and proceed with an open mind. The first part of the “big picture” is honesty. Don’t falsify any information on any documents. It will lead to more headaches and hassle later on by causing others to question your credibility. You want a loved one to receive the benefits he is entitled to by law.

The Foundation explains that the second part of this is consistency. When helping a loved one apply for different benefits and medical support, a caregiver must keep in mind that many programs will require the exact same documentation. The main question will be: What is a loved one’s health status at any given point?  When preparing legal documents, this may be measured against different definitions, but it is important to be truthful and consistent.  Use the big-picture approach to see how a loved one’s benefits will all fit together and what gaps may need to be filled.

Day-to-Day

The unknowns of the day-to-day caregiving are probably the most stressful for caregivers. Having systems in place of organization and support will make these situations seem less overwhelming.

Adapting the home environment is one of the major tasks any caregiver must take on. Whether at a senior residence or the person’s personal home, small changes can be made to avoid big disasters. Living areas, kitchens and bathrooms can be adapted to help the decreasing cognitive and physical abilities of a loved one with Parkinson’s. Make sure there are open pathways around the home and remove obstacles and unsteady rugs, decorations, etc. that may cause an accident. Put grab bars in bathrooms and even along hallways. Designate hot or cold on faucets with labels and colored tape. Leave items at chest or waist height so reaching won’t cause falls.

In addition to changing the environment, a caregiver must be able to help with adjustments on daily tasks such as dressing, teeth brushing, showering, etc. Confusion and unsteadiness make these seemingly standard tasks challenging. Help a loved one understand what is going on and proceed slowly, with care and compassion.

A very common symptom of Parkinson’s is “freezing.”  Help a loved one move around easier by pretending they are walking over something, or rock very slowly back and forth to get moving again. Exercise, to any degree possible, is very important to a loved one’s health and well-being. Sitting around will only make their mind-set diminish, as well as the physical aspects.

Encourage activity, communication and involvement socially as much as possible. As the disease progresses, these things will become more and more challenging to do. It’s important a caregiver encourage it when a loved one still is able to be involved.

For caregiving in the latter stages of Parkinson’s disease, challenges will arise. A caregiver should plan ahead and anticipate problems. Have paperwork done and organized. Separate tasks into smaller, manageable parts to encourage independence. The trenches won’t seem so deep then!

Article from Caregiver.com.

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Characterization of Parkinson Disease With Restlessness

Highlights

  • A study was conducted of restless leg syndrome, leg motor restlessness, and their variants in Parkinson disease and related disorders.
  • A total of 49.2% of PD patients had any restlessness, including RLS and LMR.
  • LMR variants and RLS variants are rare in PD and related disorders.
  • PD with restlessness was related to autonomic, sleep and depressive symptoms.

Objective
The objective of this study was to investigate the prevalence of restless leg syndrome (RLS), leg motor restlessness (LMR) and RLS/LMR variants and their relationship with clinical factors in patients with Parkinson’s disease (PD) and related disorders.

Methods
Sixty-three PD patients, 17 multiple system atrophy (MSA) patients and 11 progressive supranuclear palsy (PSP) patients were included in this study. Through face-to-face interviews, the patients were diagnosed with RLS/LMR, or with RLS/LMR variants in which the symptoms occur predominantly in body parts other than the legs.

Results
The frequency of RLS, LMR, RLS variants and LMR variants was as follows: PD (12.7%, 11.1%, 0% and 1.6%); MSA (5.9%, 11.8%, 0% and 0%); and PSP (0%, 9.1%, 0% and 0%). Restlessness without the urge to move was observed in 25.4% of the PD patients, 11.8% of the MSA patients and 0% of the PSP patients. The PD patients with restlessness exhibited higher Hoehn and Yahr stages and higher scores on the Scales for Outcomes in PD-Autonomic, PD sleep scale-2 and Beck Depression Inventory-II. The olfactory functioning, 123I-MIBG myocardial scintigraphy uptake and dopamine transporter single photon emission computed tomography findings did not differ between the PD patients with restlessness and those without. The severity of RLS was correlated with the autonomic symptoms among the PD patients with restlessness.

Conclusion
PD with restlessness was characterized by increased autonomic, sleep and depressive symptoms. Further studies including a large sample are warranted to characterize restlessness in PD and related disorders.

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